Jesy Nelson's World Turns Darkest as Twins Diagnosed with Rare Muscular Disease
Pop sensation Jesy Nelson, who rose to fame with girl group Little Mix, has been left reeling after her eight-month-old twin daughters were diagnosed with a rare and devastating neuromuscular disorder called Spinal Muscular Atrophy (SMA) Type 1.
The 34-year-old singer-songwriter broke down in tears while sharing the heartbreaking news on Instagram, revealing that doctors have told her babies Ocean Jade and Story Monroe may never walk or regain neck strength, leaving them with significant disabilities. "We were told they're probably never going to be able to walk... they probably will never regain their neck strength so they will be disabled," Nelson said, her voice shaking with emotion.
SMA is a genetic condition that causes progressive muscle weakness, leading to wasting of certain muscles over time. According to the Cleveland Clinic, there is no cure for SMA, but therapies and medications can help manage symptoms. The condition is considered one of the most severe muscular diseases a baby can develop, and its progression can be rapid.
Nelson had initially flagged some concerns with her daughters' movement after just a few months old, which led to their diagnosis at eight months. Her mother noticed that the twins were not showing as much movement in their legs as they should have been. "A few signs then started to show a bit later on that they were struggling to feed properly," Nelson recalled. She urged parents to be vigilant and seek medical attention immediately if they notice any concerning symptoms.
The diagnosis has left Nelson feeling overwhelmed, with her babies requiring constant treatment and care. "If it's not treated in time, your baby's life expectancy will not make it past the age of 2," she warned, highlighting the importance of early intervention.
Nelson's journey as a mother has taken a dramatic turn since welcoming her twins, Ocean Jade and Story Monroe, in May 2025. After facing backlash over her appearance and singing style in 2021, she took a step back from the spotlight before returning with her new family. However, this latest development has left fans and friends in shock, as they try to come to terms with the challenges that lie ahead for the young mother and her babies.
Pop sensation Jesy Nelson, who rose to fame with girl group Little Mix, has been left reeling after her eight-month-old twin daughters were diagnosed with a rare and devastating neuromuscular disorder called Spinal Muscular Atrophy (SMA) Type 1.
The 34-year-old singer-songwriter broke down in tears while sharing the heartbreaking news on Instagram, revealing that doctors have told her babies Ocean Jade and Story Monroe may never walk or regain neck strength, leaving them with significant disabilities. "We were told they're probably never going to be able to walk... they probably will never regain their neck strength so they will be disabled," Nelson said, her voice shaking with emotion.
SMA is a genetic condition that causes progressive muscle weakness, leading to wasting of certain muscles over time. According to the Cleveland Clinic, there is no cure for SMA, but therapies and medications can help manage symptoms. The condition is considered one of the most severe muscular diseases a baby can develop, and its progression can be rapid.
Nelson had initially flagged some concerns with her daughters' movement after just a few months old, which led to their diagnosis at eight months. Her mother noticed that the twins were not showing as much movement in their legs as they should have been. "A few signs then started to show a bit later on that they were struggling to feed properly," Nelson recalled. She urged parents to be vigilant and seek medical attention immediately if they notice any concerning symptoms.
The diagnosis has left Nelson feeling overwhelmed, with her babies requiring constant treatment and care. "If it's not treated in time, your baby's life expectancy will not make it past the age of 2," she warned, highlighting the importance of early intervention.
Nelson's journey as a mother has taken a dramatic turn since welcoming her twins, Ocean Jade and Story Monroe, in May 2025. After facing backlash over her appearance and singing style in 2021, she took a step back from the spotlight before returning with her new family. However, this latest development has left fans and friends in shock, as they try to come to terms with the challenges that lie ahead for the young mother and her babies.
I feel so bad for Jesy Nelson, she's already been through so much after her struggles in the spotlight and now this news is just heartbreaking. As a parent myself, it's hard to imagine going through what she's going through right now. The thought of her babies not being able to walk or regain neck strength is devastating. I hope they receive the best care possible and that therapy and meds can help manage their symptoms. 
️ She's already been through so much with all the drama and whatnot, but to have this happen to her tiny munchkins? 
It's just too much. I feel like she's going to lose it completely 
SMAs Type 1 is no joke, and it's devastating that these little ones might not get to experience some basic things like walking or even just being able to hold their heads up 
And the thing that's scaring her is that they might not live past 2 years old... 
That's just heartbreaking. I'm sending all my love to Jesy and her little ones, and to all the parents out there who are going through this too 
I'm literally shook for Jesy Nelson right now! 
. I can only imagine how scary it must be for her as a new mom 
. It's amazing that she's being open and honest about the situation, but also so brave to share the struggles of dealing with SMA Type 1 
. As a mom myself, I can only imagine how overwhelming it must be to care for two tiny humans with such serious needs 
#SMAawareness #NewMomLife #SupportJesy 
Jesy Nelson is going through so much and I can only imagine how hard it must be for her as a mom to deal with this diagnosis for her twin babies 
. The fact that they might never walk or regain neck strength... *sigh* 
. We gotta support her & her babies through this tough time 
to these little munchkins despite everything. we should all be supporting her & sending love 
to ocean jade & story monroe